On a Medical Frontier, Parents Push Forward | The East Hampton Star

On a Medical Frontier, Parents Push Forward | The East Hampton Star

On a Medical Frontier, Parents Push Forward Yupay Thu, 07/16/2026 - 10:18 Vera, who at 8 years old was the first child diagnosed with a mutation of the TNPO2 gene, is pictured recently at her school’s pajama day. Andrea Messina By Bettina Neel July 16, 2026 In 2022, an East Hampton mother learned that her son had a rare genetic condition. He had been diagnosed with global developmental delay as a child, and was enrolled in special education pr…