Local View: Restore rare-disease program to keep hope on schedule

Local View: Restore rare-disease program to keep hope on schedule

When a clinical trial slips from “this month” to “next quarter,” nothing dramatic happens in the Capitol — but in a living room somewhere, a parent reassesses hope. Since the Rare Pediatric Disease Priority Review Voucher (PRV) Program lapsed last December, those slips stopped being hypothetical. The PRV Program is one of the few levers that makes investment in research and development for devastating pediatric diseases viable. Without it, inves…