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Libyan Families Demand Probe Into Delayed SMA Gene Therapy for Children
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Libyan Families Demand Probe Into Delayed SMA Gene Therapy for Children
Patients with spinal muscular atrophy (SMA) and their families have issued a strongly worded statement holding the Support and Development of Therapeutic Services Authority fully responsible—both legally and ethically—for what they described as unjustified delays in sending children abroad to receive the gene therapy injection Zolgensma in the United Arab Emirates. The statement accused the authority of prolonged administrative procrastination t…
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