Heby resident Karolis Schröder, 18, lives with the rare disease nephropathic cystinosis and must take medication every six hours – around the clock. A new long-term treatment would give him longer, uninterrupted sleep and greater freedom in everyday life, but despite the drug being approved in Sweden, Uppsala Region says no.
Heby resident Karolis Schröder, 18, lives with the rare disease nephropathic cystinosis and must take medication every six hours – around the clock. A new long-term treatment would give him longer, uninterrupted sleep and greater freedom in everyday life, but despite the drug being approved in Sweden, Uppsala Region says no.