"It Was Still Strange to Do so Much Pneumothorax": at the Age of 21, He Wants to Make Known His Rare Genetic Disease.

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After many years of medical wandering, Tanguy Beuvin finally put a name on the evil that was eating him: Birt-Hogg-Dubé syndrome. An operation allowed him to return to an almost normal life. Today, he testifies to help those who, like him, are looking for answers.