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Girl diagnosed with rare muscle condition after she stopped crawling

  • Ellie Soares, 11, was diagnosed with a rare muscle-wasting condition after she stopped crawling as a baby.
  • Genetic testing revealed that Ellie has Spinal Muscular Atrophy Type 2, a degenerative muscle condition.
  • The diagnosis has raised awareness about the challenges faced by those with rare conditions.
  • Ellie's situation highlights the importance of early detection and genetic testing for rare diseases.
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InsideNoVA.comInsideNoVA.com
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Girl diagnosed with rare muscle condition after she stopped crawling

“She dreams that she’s not in a wheelchair. She dreams that she can run."

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The Indiana Gazette Online broke the news in Indiana, United States on Thursday, June 19, 2025.
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