US EditionDrug body members quit, B.C. minister apologizes to family of girl with rare disease
- Four members of British Columbia's Expensive Drugs for Rare Diseases Committee resigned after the government reinstated funding for a 10-year-old girl with a rare disease, contrary to their recommendation.
- Minister Osborne apologized to the girl's mother, Jori Fales, expressing regret for their pain and suffering.
- Osborne acknowledged the significant public support for Charleigh and her family, indicating that British Columbians care deeply.
- The minister noted that public outrage and media scrutiny pushed the government to make the right decision regarding the funding.
30 Articles
30 Articles
Drug Body Members Quit, BC Minister Apologizes to Family of Girl With Rare Disease
Four members of British Columbia’s Expensive Drugs for Rare Diseases Committee have resigned after the government went against its recommendation and reinstated medication funding for a 10-year-old girl. The fallout from the handling of Charleigh Pollock’s case also saw Health Minister Josie Osborne apologize to the Vancouver Island girl’s family on Friday. Pollock is the only person in B.C. with incurable Batten disease, and the treatment to re…
castanet.net
Drug body members quit, B.C. minister apologizes to family of girl with rare disease
Four members of British Columbia's Expensive Drugs for Rare Diseases Committee have resigned after the government went against its recommendation and reinstated medication funding for a 10-year-old girl with a rare disease.
Public Health Minister Víctor Atallah indicated that high-cost medications are not being switched for patients with diseases such as cancer. He made these statements this Saturday after being questioned by journalists about the complaint filed by the Dominican Society of Medical Oncology regarding the switching of medications to a generic version without quality assurance. Atallah stated that Public Health respects the prescription issued by the…
VICTORIA — British Columbia's Minister of Health, Josie Osborne, apologizes to the family of a 10-year-old girl from Vancouver Island with a rare disease, following a public debate about the province's decision to stop funding her medication. Ms. Osborne apologized at a press conference after her government announced the re-establishment of drug funding for Charleigh Pollock, the only person in British Columbia with Batten's disease.
Mother of girl with rare disease says "nightmare is over" after B.C. restores funding – Energeticcity.ca
VICTORIA — The mother of a 10-year-old Vancouver Island girl who has an extremely rare disease says the “nightmare is over” after the government restored funding for her daughter’s drug for as long as she needs it. Charleigh Pollock is the only person in B.C. to have Batten disease, and her mother Jori Fales says in a social post that she is “beyond grateful” for “all the beautiful humans that have moved mountains” for her daughter. Pollock says…
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