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Conservative health critic says B.C. falls short on rare disease drug coverage and transparency

  • Anna Kindy, a Conservative MLA, demands reforms to British Columbia's drug funding process for rare diseases after funding for the medication Brineura was cut for Charleigh Pollock, a child with Batten disease.
  • Health Minister Josie Osborne reinstated funding for Brineura on July 17 due to public backlash over its initial removal.
  • Ten physicians resigned from the Expensive Drugs for Rare Diseases committee after the funding reversal caused tensions within the medical community.
  • Premier David Eby vowed to reform the committee, addressing claims of insufficient transparency and conflict between experts over drug effectiveness.
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North Island Gazette broke the news in Port Hardy, Canada on Thursday, July 31, 2025.
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