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Baby from Frigiliana battles ultra-rare neurodegenerative disease

Summary by Euro Weekly News
Frigiliana parents Ylenia and David faced unimaginable fear on December 12, 2025, when their four-month-old son Nahel suddenly suffered convulsions at home in the early hours. Emergency hospital transfers, extensive tests and anxious waiting led to a devastating diagnosis: IRF2BPL-related disorder, also known as NEDAMSS syndrome. Nahel entered the world on August 25, 2025… Source

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Euro Weekly NewsEuro Weekly News
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Baby from Frigiliana battles ultra-rare neurodegenerative disease

Frigiliana parents Ylenia and David faced unimaginable fear on December 12, 2025, when their four-month-old son Nahel suddenly suffered convulsions at home in the early hours. Emergency hospital transfers, extensive tests and anxious waiting led to a devastating diagnosis: IRF2BPL-related disorder, also known as NEDAMSS syndrome. Nahel entered the world on August 25, 2025… Source

·Spain
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Euro Weekly News broke the news in Spain on Tuesday, March 24, 2026.
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