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Amber and Rowan – A Mother’s Perspective: Being Brave with SLC13A5 – Patient Worthy

Summary by Patient Worthy
SLC13A5 Epilepsy affects not just individuals, but friends and families as well. The following perspective, as told by Amber, mom to TESS Superhero Rowan, aims to give insight into what it might be like to love and care for someone with SLC13A5 Epilepsy. I was so ready to be a mom. To have a tiny […]
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Patient Worthy broke the news in on Wednesday, March 12, 2025.
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