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A Pompe patient shares his experiences with diaphragm issues

Summary by Pompe Disease News
In my last column, as part of “The Pompe Community Diaries” series, I introduced 59-year-old Steve Bersani, who lives with Pompe disease and served in the Boston Police Department for 30 years before retiring in 2018. In recent video chats with Bersani, we discussed the issues he faces because of his collapsed diaphragm. Excerpts, edited for clarity, follow. AW: Describe the diaphragm issues you face today. SB: I have no diaphragm, so my respira…
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Pompe Disease News broke the news in on Friday, March 28, 2025.
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