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A conversation about living with Pompe disease and diabetes

Summary by Pompe Disease News
Sean Doerr is sometimes known in the Pompe community as the man with the ambulance-turned-motor home, which he affectionally calls the “PompeTrek.” Sean has Pompe disease and type 1 diabetes. I recently spoke with him via video chat about what it’s like living with these two chronic illnesses. Excerpts of our conversation follow. AW: Can you describe what getting your two diagnoses was like? SD: I was diagnosed with type 1 diabetes at 12 years o…
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Pompe Disease News broke the news in on Friday, April 11, 2025.
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