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Top WFH - World Federation of Hemophilia News

NMO Profile: Making a Difference with the WFH in the Dominican Republic
Javier Milei · Argentina

NMO Profile: Making a Difference with the WFH in the Dominican Republic

100% Right coverage: 2 sources
National member organizations (NMOs) are the heartbeat of the World Federation of Hemophilia (WFH). The WFH works in close collaboration with NMOs to provide them with support tailored to their realities to help them increase the level of care for the people with bleeding disorders (PWBDs) in their countries. Every few weeks we will be profiling an NMO on the WFH News page, showcasing the work that they are doing, the challenges they are facing,…See the Story
Georges St-Pierre calls Order of Canada his 'greatest honour'
UFC · Montreal

Georges St-Pierre calls Order of Canada his 'greatest honour'

100% Left coverage: 1 sources
The former UFC star's recent appointment was in recognition of his anti-bullying and sports promotion work among young people.See the Story

WFH support allows young Sri Lankan to walk again

In the past, if a person was diagnosed with of hemophilia in Sri Lanka—assuming they were fortunate to be diagnosed at all—it meant they had before them a short life of extreme hardship. Encouragingly, thanks to the support of the World Federation of Hemophilia (WFH), this dire situation has changed drastically in recent years, giving people with bleeding disorders (PWBDs) in the country hope. One example of a changed life is that of a 20-year-o…Sri Lanka · Sri LankaRead Article

Introducing the Third Edition of Diagnosis of Hemophilia and Other Bleeding Disorders: A Laboratory Manual

The World Federation of Hemophilia (WFH) is pleased to announce the release of the third edition of the Diagnosis of Hemophilia and Other Bleeding Disorders: A Laboratory Manual. This updated edition serves as an essential resource for laboratory professionals, clinicians, and researchers involved in the diagnosis and management of bleeding disorders. The post Introducing the Third Edition of Diagnosis of Hemophilia and Other Bleeding Disorders:…Montreal · MontrealRead Article

Empowering future leaders: WFH 2025 Global Youth Leadership Training

In April, young leaders from WFH national member organizations (NMOs) worldwide convened in Dubai, United Arab Emirates for the WFH 2025 Global Youth Leadership Training. This biennial training—now in its 10th edition—provided participants with critical organizational development skills to ensure the long-term sustainability and growth of patient organizations globally. The post Empowering future leaders: WFH 2025 Global Youth Leadership Trainin…Read Article

WFH 2024 Annual Report released, highlighting progress

The World Federation of Hemophilia (WFH) is proud to release its 2024 Annual Report! Despite a challenging financial and geopolitical environment, the WFH made significant strides in advocacy, access to care—all while strengthening partnerships with key stakeholders. The post WFH 2024 Annual Report released, highlighting progress appeared first on World Federation of Hemophilia.Environment · MontrealRead Article

WFH 2024 Twins of the Year announced

The World Federation of Hemophilia (WFH) is pleased to announce the 2024 Twins of the Year! The 2024 Hemophilia Organization Twinning (HOT) Program Twins of the Year are the Hemophilia Foundation of Uganda (Uganda) and the Rocky Mountains Hemophilia and Bleeding Disorders Association (Montana/Wyoming, U.S.A). The 2024 Hemophilia Treatment Centre Twinning (HTC) Program Twins of the Year are the Amrita Institute of Medical Sciences, Kochi (India) …Uganda · UgandaRead Article

2024 WBDR Impact Report published

The World Federation of Hemophilia (WFH) is proud to publish the 2024 World Bleeding Disorders Registry (WBDR) Impact Report, marking the seventh year of this important global initiative. The WBDR is designed to systematically collect real-world clinical data on people with hemophilia (PWH) and people with von Willebrand disease (PwVWD), and the report shows that the registry is playing an ever-increasing role in shaping care, research, and advo…Read Article

Chatowa Kawonga: from diagnosis to determination in Zambia

The World Federation of Hemophilia (WFH) has supported the global bleeding disorders community in Zambia for years, providing various support for the local inherited bleeding disorders community. This support has benefitted hundreds of people in the country, including Chatowa Kawonga, a 19-year-old woman with VWD. Thanks to WFH support, Chatowa Kawonga has been able to defy the limitations of her lifelong medical condition. The post Chatowa Kawo…Zambia · ZambiaRead Article

Making a difference in Zambia, one patient at a time

At a small farm in Zambia, 35-year-old Martin Mutandwa tends to tomatoes, fish, pigs, and corn with dedication. Diagnosed with hemophilia at age five, Martin’s journey has been marked by frequent hospitalizations that interrupted his education and isolated him from childhood play. It was only when his quality of life dramatically improved—thanks to the efforts of the World Federation of Hemophilia (WFH)—that he was able to find purpose in life. …Fish · ZambiaRead Article

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