Rare Diseases Day: Understanding Dermatological Impacts
Summary by Time News
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Casey excited for next step and challenge
A schoolgirl born with the most severe form of a genetic skin condition, is preparing to make the leap to secondary school. Casey Connors, 12, has a daily battle with recessive dystrophic epidermolysis bullosa (EB), caused by the absence of essential proteins that bind the skin layers together. She endures painful bandage changes that can last three hours at a time but which are needed to protect her skin, 70% of which is covered in open wounds.…
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