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Wisconsin sisters with rare hearing loss receive newly approved therapy
The therapy was infused directly to reach the cells affected by genetic hearing loss, and follow-up tests showed both girls could hear.
- In July, Wisconsin sisters Cleo and Lennon Plumb became the first in the U.S. to receive Otarmeni, a newly approved gene therapy treating rare genetic hearing loss.
- Born with profound hearing loss, both girls were diagnosed with a rare genetic condition that prompted doctors to recommend experimental treatment at Children's Wisconsin.
- Parents Ty and Emily Plumb attended follow-up tests on August 24 and 25 at the Children's Wisconsin Appleton Clinic, where audiologist Dr. Olivia Riemer administered hearing assessments.
- Dr. Karl Doerfer, medical director of otolaryngology at Children's Wisconsin, called the therapy the 'first step' transforming genetic hearing loss management, though the family awaits final results.
- Otarmeni provides a potential solution for patients previously limited to symptom management, marking a significant shift by directly addressing the underlying genetic cause of hearing loss.
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Leaning Left4Leaning Right0Center30Last UpdatedBias Distribution88% Center
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C 88%
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