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End is near, Pillen says, for persistent ‘wait list’ for Nebraskans with developmental disabilities

  • Governor Jim Pillen and Nebraska officials announced an $18 million investment on March 31, 2025, to improve access to care for individuals with developmental disabilities as Developmental Disabilities Awareness Month closed.
  • Nebraska has historically had a long waitlist for developmental disability services, which Governor Pillen aimed to eliminate since last March.
  • The state's new approach focuses on individual needs and includes Medicaid expansion, family support waivers providing up to $10,000 annually, and more immediate, targeted services like funding for childcare and vehicle modification.
  • Last March, the waitlist contained about 2,700 people with a projected wait of up to eight years for available funds, but it has since been reduced to approximately 700, requiring a roughly $40 million annual investment with federal funds covering a portion.
  • State officials expect to fully eliminate the waitlist for Nebraskans seeking intellectual and developmental disabilities services by June 30th, though some advocates are still evaluating the impact of the changes and express concern about access to comprehensive residential services.
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ramaonhealthcare.com broke the news in on Sunday, March 30, 2025.
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