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P.E.I. woman sheds light on gaps in care for under-researched genetic disorder

Summary by CBC News
Christine Gordon Manley was around 12 years old when she started to feel severe pain in her knees. Growing up, her chronic pain had been mostly dismissed as just growing pains. Decades later — after pain spread to her hands, jaw and ultimately the rest of her body — she finally got an answer about what it could be.

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CBC News broke the news in Canada on Sunday, May 17, 2026.
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