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I Spent 40 Years Looking For Answers to My Pain. I Didn’t Know I Had a Rare Genetic Disorder.

Summary
EspañolAs told to Shannon Shelton MillerMy own story really starts with my mom’s health journey. She had been very ill as a child and no one could figure out what was wrong with her. In March 1979, she underwent one of the first kidney transplants completed in the United States.Her healthcare providers (HCPs) were shocked when she got pregnant not long after the transplant. Many people in her life were afraid the pregnancy would kill her, but my…
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As told to Shannon Shelton Miller: My story really begins with my mom's health problems. She became seriously ill as a child, and no one could identify what was wrong with her. In March 1979, she underwent one of the first kidney transplants ever performed in the United States. Her healthcare providers (HCPs) were shocked when she became pregnant shortly after the transplant. Many people I knew were afraid she wouldn't survive the pregnancy, but…

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HealthyWomen broke the news in on Tuesday, March 10, 2026.
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