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How to Care for a Child With Pompe Disease
Summary by EverydayHealth.com
1 Articles
1 Articles
How to Care for a Child With Pompe Disease
Emotional Support Providing Emotional Support Pompe disease can stress the whole family, including caregivers and siblings. Emotional care is nearly as vital as medical care. Make infusions special. Turn long ERT infusion sessions into one-on-one bonding time. “Bring in toys or Legos,” says Marrer-Stein. “Turn it into our day together.” Try to make the child’s life as normal as possible . While Marreno-Stein says it’s crucial to stay on schedu…
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