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From Wheelchair to Advocacy Leader: How One Woman’s Battle With Lyme Disease Sparked a Growing Nonprofit Movement
The volunteer-run nonprofit provides education, peer support and tick kits as Lyme disease cases and tick habitats continue to rise, officials and experts say.
- Jeanette Marie, the 35-year-old founder of LymeLightNow, launched the nonprofit to support patients with Lyme disease. "I wished someone had been there to guide me," she said, explaining her mission to help others navigate confusion following a diagnosis.
- Jeanette's initiative stems from her personal battle with Severe Lyme, which left her wheelchair-bound and fighting for her life. She built the 501 nonprofit alongside co-founder Robin Schwoyer, creating a grassroots approach to support patients navigating a medical system that often struggles with tick-borne illnesses.
- Volunteers distribute Tick ID cards and kits while conducting face-to-face outreach at community events, parks, and local gatherings. They share prevention strategies and demystify tick-borne illnesses, ensuring outdoor enthusiasts, families, and pet owners have access to critical information and peer support.
- LymeLightNow is currently seeking donations and community sponsorships to expand its reach as a fully volunteer-run organization. Every contribution supports production of educational materials, assembly of tick kits, and outreach events across the region.
- Tick populations have surged in recent years, making the Growing Nonprofit Movement increasingly urgent as habitats expand and infection rates rise. LymeLightNow continues to grow, providing essential resources to help protect communities from tick-borne threats.
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Coverage Details
Total News Sources67
Leaning Left7Leaning Right2Center35Last UpdatedBias Distribution80% Center
Bias Distribution
- 80% of the sources are Center
80% Center
L 16%
C 80%
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