Goldmine of Research on Long Covid, Q Fever Patients About to Be Destroyed
6 Articles
6 Articles
The government must take action to protect data from many thousands of Q fever and post-COVID patients from destruction. This call is made by Jos Bosch, co-coordinator of the Post-Covid Network Netherlands, a collaborative project involving experts by experience, researchers, and doctors. The professor says that a wealth of medical information is in danger of being lost. It concerns patient files from Q- and C-support. The two aid organizations…
Goldmine of research on Long Covid, Q fever patients about to be destroyed
The medical files belonging to tens of thousands of patients with Long Covid and Q fever are set to be destroyed by the end of this week, despite containing a wealth of research data. The foundation that provided support for these patients for years is being dissolved, and it can’t keep or share the data due to privacy concerns, the Volkskrant reports.
Volkskrant
Omroep BrabantFiles of tens of thousands of patients with post-COVID and Q fever are at risk of being destroyed at the end of this week, while they contain a wealth of...
Files of tens of thousands of patients are at risk of being destroyed, even though they contain valuable information for future research. This concerns the data of patients of C-support and Q-support, organizations for people with long-term symptoms following COVID-19 and Q fever. Patients can download their files until the end of this week. The organization is willing to transfer the data, but no solution has been found yet.
Files of tens of thousands of patients are at risk of being destroyed at the end of this week, even though they contain valuable information for future research. This concerns the data of patients of C-support and Q-support, organizations for people with long-term symptoms following COVID-19 and Q fever.
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