Campaigners make final appeal to HSE over Skyclarys drug

‘Friedreich’s ataxia won’t stop until every aspect of your life is ruined’ - People suffering from rare disease campaign for life-changing medicine

Advocates and politicians are urging Government and the HSE to reimburse the cost of Friedreich’s ataxia drug Skyclarys

Campaigners make final appeal to HSE over Skyclarys drug

Campaigners advocating for those affected by Friedreich's Ataxia have again appealed to the HSE to approve the Skyclarys treatment ahead of a final decision next week.

People suffering from rare disease ‘beg’ for life-changing medicine

Skyclarys for Friedreich's ataxia: Ireland’s drug reimbursement process needs greater transparency

As patients with Friedreich’s ataxia wait for a decision on Skyclarys, Ireland must rethink how we assess costly medicines.