After Mobilization, U.S. Institute Says It Will Try to Help Lito Sousa
7 Articles
7 Articles
The Broad Institute stated today that it is in contact with the team of Lito Sousa to evaluate the options available to the influencer, diagnosed with DCJ (Creutzfeldt-Jakob disease). Positioning occurs after a mobilization of fans in the social networks
Mila Seidl said the family hasn't gotten a spot yet for the influencer to have access to one of the experimental treatments.
The Minister of Health, Alexandre Padilha, informed on Tuesday, 25, that there is no treatment in the world for Creutzfeldt-Jakob's disease, which affected the influencer Lito Sousa. In a post in the X, Padilha stated that he came into contact with the influencer's relatives and international researchers to support the search for research centers and... The post 我There is no treatment in the world, says Padilha about Lito Sousa's disease appeare…
<p>Family mobilizes social networks and the Ministry of Health to include an influencer, diagnosed with rare disease, in research conducted in the US. The ‘Nexus' explains the norms </p> <media:content url="https://nexo-uploads-beta.s3.amazonaws.com/wp-content/uploads/images/2026/08/Lito-Sousa.png" type="image/png" medium="image"> <media:title> The pilot and mechanic of Lito Sousa airplanes on their YouTube channel </media:title> <media:credit> …
Alexandre Padilha reports having come into contact with family and pharmacists, in addition to making the Ministry of Health available
The call of the pilot and influencer Joselito Geraldo de Sousa, known as Lito Sousa, 59, who received the diagnosis of Creutzfeldt-Jakob's doen and who did not succeed in being included in two experimental studies seeking treatment, has rekindled a recurring question: how does a patient gain access to a re die still in the research phase? Read more (08/25/2026)
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