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Top Alpha-1 Foundation News

NIH scientists publish declaration criticizing Trump’s deep cuts in public health research
National Institutes of Health · United States

NIH scientists publish declaration criticizing Trump’s deep cuts in public health research

65% Center coverage: 162 sources
In his confirmation hearings to lead the National Institutes of Health, Jay Bhattacharya pledged his openness to views that might conflict with his own. “Dissent,” he said, ”is the very essence of science.”See the Story
APhA Withholds Endorsement of ACIP Adult Immunization Schedule
Vaccines · Washington

APhA Withholds Endorsement of ACIP Adult Immunization Schedule

66% Center coverage: 38 sources
WASHINGTON, June 9, 2025 /PRNewswire/ -- APhA is the only pharmacy representative among several professional organizations that reviews and evaluates the ACIP Adult Immunization Schedule annually. Recently, there have been several updates to the COVID-19 vaccine recommendations made by the…See the Story

Alpha-1 Foundation recognizes 2025 Grant Award Recipients during ATS  - Alpha-1 Foundation

On Monday, May 19th, 2025, the Alpha-1 Foundation (A1F) hosted its annual A1F Grants Award Reception at the San Francisco Museum of Modern Art. The annual American Thoracic Society International Conference provides the ideal forum to honor the A1F Founder’s vision of investing in research and science, recognizing the most recent grant recipients, while also celebrating having distributed more than $100 million in grant funding over three decades…Maryland · MarylandRead Article

Post-Event Recap: 2nd Annual Walk in Memory of Lorraine Cimino   - Alpha-1 Foundation

Sunday, May 18, 2025 Bay 8th Baseball/Softball Field 1A – Brooklyn, NY  On Sunday, May 18, 2025, more than 100 participants gathered at the Red Devils Softball Field in Brooklyn, New York to honor the life and legacy of Lorraine Cimino—a woman remembered for her warmth, kindness, and the lasting impact she had on so many lives. The event raised an incredible $6,665 this year, bringing the two-year total to over $14,000 in support of research and…New York State · New YorkRead Article

Building a faster, more effective clinical trials system

By MHRA Chief Executive Lawrence TallonSee the Story

Susan Jacobs, RN, MS, to Receive a 2025 American Thoracic Society Respiratory Health Award

The American Thoracic Society is proud to announce that Susan Jacobs, RN, MS, will receive a 2025 ATS Respiratory Health Award. Ms. Jacobs will be presented with ATS’s Public Service Award for her exemplary achievements in respiratory health based on her work at Stanford Medicine.Stanford · StanfordSee the Story

Stranger Who Donated Liver to Young Boy Surprises Him at His First Communion. His Reaction Is Priceless. - Alpha-1 Foundation

Melissa shared that Richie is doing great post-transplant and is now in 3rd grade. He received his First Holy Communion last weekend. Even more heartwarming, Richie’s donor and their family, with whom they remain in close contact, surprised him by attending the celebration. Richie Ramirez and his family have been proudly involved with the Alpha-1 Foundation Virtual Walk, walking under their team name, Team Lucky Luciano. Each year, they gather w…New York State · New YorkRead Article

A1F signs-on urging Congress to cosponsor the SOAR Act - Alpha-1 Foundation

The Alpha-1 Foundation (A1F) joins 30 organizations requesting Congress to cosponsor bipartisan legislation A.1406/H.R.2902, the Supplemental Oxygen Access Reform (SOAR) Act, ensuring the individuals, like lung affected Alphas, can access the oxygen treatment and services they need to live healthy and more full lives. Dear Senator/Representative: We are writing as a group of more than 30 patient, healthcare professional, and industry organizatio…Washington · WashingtonRead Article

A1F proudly convenes the 7th Global Research Conference & 10th Patient Congress in Lisbon, Portugal  - Alpha-1 Foundation

The Alpha-1 Foundation’s (A1F) 7th Global Research Conference & 10th Patient Congress kicks off today in Lisbon, Portugal. With a deep history of international collaboration, A1F is proud to host representatives from over 25 countries who share a drive to cure Alpha-1 Antitrypsin Deficiency (Alpha-1) and to improve the lives of Alphas worldwide. A1F’s Global Program works tirelessly with patients and stakeholders to increase awareness, detection…Lisbon, Portugal · LisbonRead Article

Salazar Reintroduces Bill To Expand Home Infusions For Medicare Beneficiaries With Rare Genetic Disease - Alpha-1 Foundation

On behalf of the Alpha-1 Foundation and entire patient community, we are thrilled with the announcement of the reintroduction of the John W. Walsh Home Infusion Bill. Thank you to Congresswoman Salazar for her continued support in sponsoring this important initiative and commitment to Alphas nationwide. We are proud of the perseverance of the community in securing co-sponsors to move the bill forward. We are excited for the action this term and …Washington DC · WashingtonRead Article

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