Von Hippel-Lindau Syndrome, a New Campaign Beyond Folds, Gives Voice to Patients
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ROME (ITALPRESS) "Tell a rare disease starting not from diagnosis, but from people. It is this goal to "In addition to the folds of rarity" , the new awareness campaign promoted by MSD, under the patronage of the Italian Association of VHL Onlus Families, dedicated to von Hippel-Lindau syndrome (VHL).Through the voices and experiences of patients, the campaign [...]
In addition to the folds of rarity - True stories of people with von Hippel-Lindau syndrome: the new campaign dedicated to this rare disease This article von Hippel-Lindau syndrome: from symptoms to care, a book gives voice to patients comes from LaPresse
ROME (ITALPRESS) "Tell a rare disease starting not from diagnosis, but from people. It is this goal to "In addition to the folds of rarity" , the new awareness campaign promoted by MSD, under the patronage of the Italian Association of VHL Onlus Families, dedicated to von Hippel-Lindau syndrome (VHL).Through the voices and experiences of patients, the campaign [...]
canaledieci.it
(Adnkronos) "Tell a rare disease starting not from diagnosis, but from people. This is the goal of "Besides the folds of rarity" , the new awareness campaign promoted by Msd under the patronage of the Italian Association of Vhl Onlus families, dedicated to von Hippel-Lindau syndrome. Through the voices and experiences of patients, the campaign proposes [...]
(Adnkronos) - Telling a rare disease starting not from diagnosis, but from people. This is the goal of "Beyond the folds of rarity" the new
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