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Speak Foundation Brings LGMD Advocates Representing More Than 20 states to Capitol Hill, Honors Bipartisan Rare Disease Champions
- Advocates with Limb-Girdle Muscular Dystrophy from over 20 states came to Washington to meet with lawmakers about rare disease research and treatment development.
- During The Speak Foundation's LGMD Day on the Hill, advocates held more than 60 meetings with congressional offices.
- They asked lawmakers to increase federal funding for LGMD research, improve regulatory pathways, and enhance access to Department of Defense funding.
- The Speak Foundation honored Rep. John Joyce and Rep. Jake Auchincloss with 2026 Congressional Champion Awards for their support of LGMD.
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stonecountyenterprise.com+16 Reposted by 16 other sources
Speak Foundation Brings LGMD Advocates Representing More Than 20 states to Capitol Hill, Honors Bipartisan Rare Disease Champions
Patient-led organization urges Congress to strengthen LGMD research and help promising rare
·Wiggins, United States
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Total News Sources17
Leaning Left4Leaning Right2Center10Last UpdatedBias Distribution63% Center
Bias Distribution
- 63% of the sources are Center
63% Center
L 25%
C 63%
12%
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