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Ontario mother of toddler with rare genetic disorder says she’s running out of options

Summary by CBC News
Mother Evelyn Pavlakidis-Soares she’s exhausted the ways to support her 2-year-old son, who was born with a rare incurable genetic disorder. Theodore suffers from severe seizures and a developmental delay, which are caused by an ARX X-linked mutation.

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CBC News broke the news in Ottawa, Canada on Friday, July 31, 2026.
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