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Finding the Missing Piece: One man's journey to a von Willebrand disease diagnosis

  • Frank experienced severe nosebleeds early in life due to von Willebrand disease .
  • Living with VWD brings constant uncertainty, but Frank and Carla advocated fiercely for their needs.
  • Receiving the diagnosis was a key moment in Frank's journey.
  • After starting VONVENDI, Frank said, "I feel like I finally found the right path forward for me.
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Finding the Missing Piece: One man's journey to a von Willebrand disease diagnosis

(Family Features) “I wanted to live my life like there was nothing wrong, but the fear was always there.”

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The Billings Gazette broke the news in Billings, United States on Monday, December 8, 2025.
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