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Family’s 120-Kilometre Walk for Life-Saving Gene Therapy Ends in Victoria
The family has raised $1.4 million and says another $700,000 is needed to begin personalized treatment development.
- On Monday, parents Stalin and Navpreet Gill completed a 120-kilometre walk from Downtown Vancouver to the B.C. Legislature in Victoria, concluding their five-day fundraising effort for their three-year-old son Gurmoh Gill's gene therapy.
- Gurmoh's diagnosis with Spastic Paraplegia Type 4, a rare neurodegenerative disorder caused by genetic mutation, prompted the family to act after noticing mobility issues when he was age one. No approved therapy exists for the condition.
- GoFundMe has raised $1.4 million toward their $2.7 million goal, leaving a $700,000 shortfall, though total treatment costs may reach around $8 million. McGill University has committed to developing the personalized therapy with raised funds.
- B.C. Health Minister Josie Osborne met the Gill family Monday afternoon but said she had no news to deliver at that point. Stalin expressed hope that the province would fund the treatment.
- The parents emphasized the walk benefits all children affected by spastic paraplegia across Canada, not just Gurmoh. Stalin noted funding would establish an architecture for developing additional genetic therapies for rare diseases.
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Family’s 120-kilometre walk for life-saving gene therapy ends in Victoria
A couple’s 120-kilometre walk to raise money for their son’s gene-therapy treatment came to an emotional conclusion in Victoria on Monday (May 25). Trailed by dozens of supporters, Stalin and Navpreet Gill arrived outside of the B.C. Legislature under cloudy skies, marking an end to a trek that began in downtown Vancouver five days ago. “We have blisters on our feet, we have cramps in our legs,” said Navpreet. “But those blisters and cramps do n…
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