Rare Diseases of Bone, Celano (Off Italia): "To Network to Improve Care and Ensure a Global Take-Over"
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"It is necessary to team up to improve the quality of care and give greater guarantees to people with rare diseases" said Antonella Celano, the referent of the Off Italia coalition at the conference in Rome on the International Day of Rare Diseases of the Bone. "Take charge both globally for patients to facilitate the quality of life for children and adults."
This is what Antonella Celano, the referent of the Off Italia coalition, said at the conference in Rome on the International Day of Rare Diseases of the Bone, said at the occasion of the conference on the International Day of Rare Diseases of the Bone. It is a global task for patients to facilitate the quality of life for young people...Read moreThe article Rare Diseases of the Bone, Celano (Off Italia): "Make a network to improve care and ensur…
(Adnkronos) "We are often faced with late diagnosis and this is because of rare diseases is always spoken of little. Despite the great movement that exists in Italy, also thanks to the work of the Higher Institute of Health, rare diseases always remain a great problem: for diagnosis, which must be as early as possible; for access [...] L'articolo Celano (Off Italia): "For rare diseases of the bones serves as global load" comes from Rec News.
Giornale Radio
"We often find ourselves faced with late diagnosis and this is because of rare diseases we always speak little. Despite the great movement that exists in Italy, also thanks to the work of the Higher Institute of Health, rare diseases always remain a great problem: for diagnosis, which must be as early as possible; for access to orphan drugs; for taking charge, which must be a global responsibility. Unfortunately, this is not always the case" sai…
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