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Published 20 days ago

AGU denies R$16 million drug for child with rare diseases » Political connection

Summary by conexaopolitica.com.br
Photo: Disclosure/Public Prosecutor The parents of Victor Yudi Pecete, a five-year-old boy, face daily anguish as they struggle against the advance of Duchenne Muscular Dystrophy, a genetic condition that threatens the life of his son. The treatment needed to ensure his survival costs about R$16 million, an incalculable amount for the family living in Maringá, Paraná. Duchenne Muscular Dystrophy is a hereditary neuromuscular disease that causes …

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