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Mom Diagnosed with Rare Condition that Could Leave Her Blind

Grace Pammant is raising £20,000 for private surgery after doctors said the rare condition could cause permanent vision loss.

  • West Yorkshire mother Grace Pammant, 35, was diagnosed in May last year with idiopathic intracranial hypertension , a rare condition causing dangerous pressure buildup in the skull that can result in permanent vision loss.
  • Doctors also identified Chiari malformation type 1, involving brain tissue extending into the spine, and despite strong medication, Grace reported worsening symptoms, saying, "The medication itself is quite nasty."
  • This illness forced Grace to stop working, causing significant distress; "But I can't see what I'm doing now," she said, adding that she struggles with basic daily tasks.
  • Seeking private surgery to relieve brain pressure, Grace fears NHS wait times are too long; "I'm out of work, so the cost seemed unattainable," she said, attempting to raise $20,000.
  • Untreated, the pressure risks damaging optic nerves and causing blindness, a prospect that deeply concerns Grace, who stated, "I don't want it to stop me from seeing my children.
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Mom diagnosed with rare condition that could leave her blind

She was diagnosed with idiopathic intracranial hypertension, which builds pressure in the skull.

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Daily Mirror broke the news in London, United Kingdom on Thursday, April 2, 2026.
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