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Inspirational Newry boy performs on stage in ‘wow moment’ with ‘hero’ Gene Simmons
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Inspirational Newry boy performs on stage in ‘wow moment’ with ‘hero’ Gene Simmons
An inspirational Newry boy battling a severe muscle wasting disease was given the once-in-a-lifetime opportunity to not only meet his idol… but to perform on stage with him! Twelve-year-old Alfie Pentony has over the last number of years been bravely campaigning alongside his parents – Jamie and Colleen – for access to medication for Duchenne Muscular Dystrophy (DMD). Despite living with all the debilitating effects of the inherited muscle wasti…
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